Question:
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? it takes a lot of breath, it gets old after awhile as well-besides who listens in the end? There are countless people who suffer from emotional psychiatric problems-even the statistics are befuddled-per anxiety some statistics state 18 % of those over the age of 18 have an anxiety disorder-other stats present 3.5% other 1.3% -this is only those counted who have sought help and are documented-what about those who haven’t been documented? What about "world" populations-the countless people who have bi polar, personality disorders, schizophrenia, depression, autism, attention deficit disorders, major and minor affective disorders, while we are at it, chron’s disease, berchet’s syndrome, MS, migraine, diabetes, sexual orientation disorders, tinnitus, the list goes on ad infinitum-people suffer enormous degrees with all kinds of afflictions and few listen to their plight, even fewer know anything about treating them with any degree of success beyonod the paliative or "management" phases-it really is an epidemic of human suffering I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I see many people who speak, yell and cajole their plights over and over and eventually fall into that breathless void because it does little to assist them. Those who share their secrets with friends, who then lose their friendships, their bosses who lose their jobs, their doctors who lose their physicians patience and respect, their spouses who lose their love-again it is an epidemic of a disorder that is still hidden away in a closet of emotional ignorance and even scientific ignorance-what stupidity our medical system shares that claims anxiety is a very treatable and cureable conditon? A position that is the mainstay of the pharmaceutical industry that claims their half baked antidepressants are the answer for these "serotonin" based diseases or "chemcial imbalances" I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. They ignore anything beyond the superficiality of their own lives and what effects them directly-even those who have a relative or friend who is housebound with agoraphobia is sort of tucked away into the neat package of "weird ol uncle Bill" or whatever I appreciate that professionals in various forms of health care have rules or protocol to follow. Their rules suck and their protocols are filled with more holes then substantive scientific knowledge I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. they appreciate it more Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. I have felt outrage for nearly 50 years-it is beyond being a neophytic outrage but a well fermented ripe level of rage and anger, coupled with some self sanctimonious sarcastic attitude of sheer contempt for most of the medical establishment, drug companies and other so called health care providers, with insurance companies on top of the list Our best treatment strategies remain forms of blind trial-and-error! that’s modern medicine and progress-empirical based medicine based on a system of physics in a language of Latin formed by a fraternity of egg headed greedy less then compassionate cluster of nincompoops Our clinical trials are tainted by conflict of interest, censored results and market influence! fueled by goverment special interest groups, politcal hacks and lobbyists and self serving professionals who want to see their names in print even if the drivel underneath it is feshman level science and inquiry Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! A non useful combatant is worthless in our system Our convicted criminals are given ten-times more health care than law-abiding disabled people! no one wants to be sued Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. there are consequences for spouting off information that is not convenient-just ask Al Gore about the ramifications, oh never mind he got an oscar and a new looser personality that even includes some Lampoonish humor Consequently, conferences and other efforts have collapsed. It’s all about the food-get better caterers and some give aways- I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. psst-give aways and perks gets their attention My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. It is the reason I have hid all the kitchen knives and stopped going to those meetings -symposiums have become somewhat Barnum and Bailey Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. I have passion and friends too but I am exhausted-maybe from that passion and friendships? (it’s a joke son) Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Arthur-there are no MUSTS-it may be addressed and chances are won’t be-we can only try to do what we can to educate and be as honest as we can be tearing apart as much hype and bullshit as we can along the way anxiety is incureable-it can be managed but not managed like a bad case of dandruf-there are significant consequences to management and it takes a great Herculian level of effort and sutanence to reach any degree of relief-and to boot-it is something that needs to be done for a whole life time, not the ten weeks our great insurnace fathers have aloted as the quantified ammount of hours of therapy they cover. Our system of medical and psychological education os deeply flawed and keeps reaping what is sowed by its academicians-poor doctors and therapists. Our system of information is not consistant or acurate-again it’s that "these conditons are easily treatable" notion again. The statistics on how many people find remission of depression using antidepressant medication is pitifal-there have been no new benzo type medications developed in decades and look how long it took our country to release long acting alprazolam. The cadres of doctors flocking to use antipsychotic drugs for anxiety disorders, antiseizure drugs, high doses of herbal supplements that have absolutely no regulatory control on their purity, dose or use-it’s enough to make one run to the couch and talk about our mothers bossoms…. It is very easy to see a glass half empty and a job to regain perspective that it is indeed half full-but it is half full. We have made some progress, we have more medications then we had twenty years ago and we have more documented perr reviewed evidence that cognitive therapy helps-real cognitive therapy not some behavioral Skinnerean shitola that is masked and relabeled cbt.. It is a daunting task to take on a disease without getting the shit kicked out of yourself every now and then. People in general want to hear about things they can easily relate to and solve quickly and simply without any mess-Weird ol uncle Bill is messy, he reminds us of the things that can go wrong in our lives that we cannot comprehend or control-we feel embarrassed by him and afraid of him, repulsed by his weakness and wonder if we can "catch" his disease if we hang out with him too long-it takes effort to see beyond poor old uncle and see the broken noble creature he has living dormant within him-it takes courage to reach out to him and assist his pain, help him take on another day of his life, another moment to just stay with us in the sunshine and not hide in the shadows-it is the very humanity that causes our diseases that causes our affinity to reach out to each other and offer help and care-We can start by trying to teach people to care-everyone seems to have an ol uncle Bill Best Wishes, Arthur — The charter is available at:http://readystump.algebra.com/~asapm
i really enjoy reading your posts margo….your knowledge and experience are of great help to me
— The charter is available at: http://readystump.algebra.com/~asapm
Response:
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur Excellent points, Arthur. I 100% agree with everything you’ve said. kili
Thank you Kili. Love and Very Best Wishes, Arthur — The charter is available at: http://readystump.algebra.com/~asapm
Response:
- Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
Excellent points, Arthur. I 100% agree with everything you’ve said. kili — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Who cares? I think alot of people care. Researchers and health care practitioners care. Also a public which is becoming more aware of mental problems as they see ads on TV and in magazines for various meds. However, I don’t understand why people don’t speak out more about the suffering we endure?
Who would we speak to? What good would it do? We aren’t the only people who are suffering. There’s a whole world of people suffering with different problems: starvation, death due to infectious diseases, and on and on. HIV epidemic in Africa. Earthquate in Pakistan. The big wave (forget the name….sunami?) that killed hundreds of thousands in Malaysia. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions.
I would rather ignore all the suffering I listed above. People tend to think/dwell on their own problems. Or the problems that have afflicted their family members. I appreciate that professionals in various forms of health care have rules or protocol to follow.
Not sure what that means. They can only offer what they think might help. I appreciate that pharmaceutical companies,
I have benefited from their antianxiety meds. alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders.
I don’t feel the outrage. Our best treatment strategies remain forms of blind trial-and-error!
That’s pretty much true for all diseases/conditions/disorders. I have medical books full of different diseases. People with anxiety disorders aren’t the only game in town. Our convicted criminals are given ten-times more health care than law-abiding disabled people!
And they can go to law school while in prison too. And get married. And have conjugal visits. Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed.
I see progress being made in mental health and other diseases. There’s lots of research and lots of new meds that are helping people. I am very upset with health care professionals in general for their lack of support.
I don’t feel that lack of support. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed.
I think it is being addressed. When I came down with panic disorder, agoraphobia, and depression in 1966 it was called "anxiety neurosis", I was given meprobamate (not enuff to block panic attacks) and my psychiatrist sat and listened and didn’t have anything to offer psychotherapy-wise. Since that time the benzodiazepines and antidepressants have become more widely used, and CBT has become better known and is being used more often. They all can help, but don’t solve all the problems with anxiety. There are psychiatric journals dedicated to psychopharmacology and anxiety. I have medical books full of different diseases, and progress is being made in most. But progress takes time, no matter what the condition. And people suffering/disabled with anxiety aren’t the only ones with problems. Chip — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks My deep thanks for everyone’s replies. It’s so hard to express valid critique these days without being accused of negative thinking and dismissed as someone who simply needs more cognitive therapy. Thank you TJ, Sunil, Elise, Frizz, Jackie and Steve. Like you, I believe that our speaking out is making a difference, albeit very slowly. Thank you Ron. I too have reached that point where the psychiatrists and psychologists do little more than suggest I repeat things that have failed in the past. They almost seem to ignore our case histories in favor of their latest pet theory or whatever therapy happens to be in fashion. Thank you Anna. Like you, I feel the new age therapies are overrated and often misleading. They mostly help countless people with mild forms of anxiety, creating an inflated illusion of efficacy that practitioners and marketers are happy to exploit. Thank you Sally. I am also thankful for the Internet. I was badly misinformed and terribly isolated for about five years before I first logged on. It has empowered the patient community more than anything else I can think of. Thank you Margrove and Chip. Yes, it’s easy for anxiety disorders to get overshadowed by all the other health issues in the world. Just today, I read an article that referred to us as the "worried well." So long as such perspectives persist, our disorders will perpetually get triaged to the bottom of the priorities list. Also, as you point out, misunderstandings have negative effects on all sorts of relationships. Over time, some people alienate us. Some people stop offering help out of fatigue or misguided notions of "tough love." Lack of empathy creates a climate which is all too tolerant of neglect and exploitation. The "weird ol uncle Bill" stereotype can be very apt and I often wonder if I’ve fallen that category myself. Love and Very Best Wishes to All, Arthur — The charter is available at: http://readystump.algebra.com/~asapm
Response:
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
Very touching post Arthur. One trouble is there are so few of us – yes, anxiety’s been prevalent throughout history. But what are we? like 3% or something of the population? Why would anybody care about 3%? Well, the 3% give one good damn, that is for sure.. That’s why I figure it is this way… At least we live in a time where we have the Internet.. without it, all of us would not have this group, or others to discuss these things with. I’m so glad about that. Just to have ANYWHERE to go and be able to say "I had an acute OTB PA" and have people understand what the hell that means? Uh.. that is golden. We just have to keep educating and not give up. For the ones that will follow us, and maybe for us too. Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm
Response:
<gently snipped ::Though I am feeling thoroughly ::discouraged and exhausted, I am not ::defeated. I still have passion and ::I still have friends. Dear Arthur, I agree with everything you said! I hope you know that you do make a difference and you are being heard. (((((Arthur))))) Jackie ~*~My halo is temporarily out of order~*~ — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure?
it takes a lot of breath, it gets old after awhile as well-besides who listens in the end? There are countless people who suffer from emotional psychiatric problems-even the statistics are befuddled-per anxiety some statistics state 18 % of those over the age of 18 have an anxiety disorder-other stats present 3.5% other 1.3% -this is only those counted who have sought help and are documented-what about those who haven’t been documented? What about "world" populations-the countless people who have bi polar, personality disorders, schizophrenia, depression, autism, attention deficit disorders, major and minor affective disorders, while we are at it, chron’s disease, berchet’s syndrome, MS, migraine, diabetes, sexual orientation disorders, tinnitus, the list goes on ad infinitum-people suffer enormous degrees with all kinds of afflictions and few listen to their plight, even fewer know anything about treating them with any degree of success beyonod the paliative or "management" phases-it really is an epidemic of human suffering I appreciate that many of us patients have phobias or like conditions that keep us from speaking out.
I see many people who speak, yell and cajole their plights over and over and eventually fall into that breathless void because it does little to assist them. Those who share their secrets with friends, who then lose their friendships, their bosses who lose their jobs, their doctors who lose their physicians patience and respect, their spouses who lose their love-again it is an epidemic of a disorder that is still hidden away in a closet of emotional ignorance and even scientific ignorance-what stupidity our medical system shares that claims anxiety is a very treatable and cureable conditon? A position that is the mainstay of the pharmaceutical industry that claims their half baked antidepressants are the answer for these "serotonin" based diseases or "chemcial imbalances" I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions.
They ignore anything beyond the superficiality of their own lives and what effects them directly-even those who have a relative or friend who is housebound with agoraphobia is sort of tucked away into the neat package of "weird ol uncle Bill" or whatever I appreciate that professionals in various forms of health care have rules or protocol to follow.
Their rules suck and their protocols are filled with more holes then substantive scientific knowledge I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make.
they appreciate it more Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders.
I have felt outrage for nearly 50 years-it is beyond being a neophytic outrage but a well fermented ripe level of rage and anger, coupled with some self sanctimonious sarcastic attitude of sheer contempt for most of the medical establishment, drug companies and other so called health care providers, with insurance companies on top of the list Our best treatment strategies remain forms of blind trial-and-error!
that’s modern medicine and progress-empirical based medicine based on a system of physics in a language of Latin formed by a fraternity of egg headed greedy less then compassionate cluster of nincompoops Our clinical trials are tainted by conflict of interest, censored results and market influence!
fueled by goverment special interest groups, politcal hacks and lobbyists and self serving professionals who want to see their names in print even if the drivel underneath it is feshman level science and inquiry Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians!
A non useful combatant is worthless in our system Our convicted criminals are given ten-times more health care than law-abiding disabled people!
no one wants to be sued Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not.
there are consequences for spouting off information that is not convenient-just ask Al Gore about the ramifications, oh never mind he got an oscar and a new looser personality that even includes some Lampoonish humor Consequently, conferences and other efforts have collapsed.
It’s all about the food-get better caterers and some give aways- I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support.
psst-give aways and perks gets their attention My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words.
It is the reason I have hid all the kitchen knives and stopped going to those meetings -symposiums have become somewhat Barnum and Bailey Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends.
I have passion and friends too but I am exhausted-maybe from that passion and friendships? (it’s a joke son) Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed.
Arthur-there are no MUSTS-it may be addressed and chances are won’t be-we can only try to do what we can to educate and be as honest as we can be tearing apart as much hype and bullshit as we can along the way anxiety is incureable-it can be managed but not managed like a bad case of dandruf-there are significant consequences to management and it takes a great Herculian level of effort and sutanence to reach any degree of relief-and to boot-it is something that needs to be done for a whole life time, not the ten weeks our great insurnace fathers have aloted as the quantified ammount of hours of therapy they cover. Our system of medical and psychological education os deeply flawed and keeps reaping what is sowed by its academicians-poor doctors and therapists. Our system of information is not consistant or acurate-again it’s that "these conditons are easily treatable" notion again. The statistics on how many people find remission of depression using antidepressant medication is pitifal-there have been no new benzo type medications developed in decades and look how long it took our country to release long acting alprazolam. The cadres of doctors flocking to use antipsychotic drugs for anxiety disorders, antiseizure drugs, high doses of herbal supplements that have absolutely no regulatory control on their purity, dose or use-it’s enough to make one run to the couch and talk about our mothers bossoms…. It is very easy to see a glass half empty and a job to regain perspective that it is indeed half full-but it is half full. We have made some progress, we have more medications then we had twenty years ago and we have more documented perr reviewed evidence that cognitive therapy helps-real cognitive therapy not some behavioral Skinnerean shitola that is masked and relabeled cbt.. It is a daunting task to take on a disease without getting the shit kicked out of yourself every now and then. People in general want to hear about things they can easily relate to and solve quickly and simply without any mess-Weird ol uncle Bill is messy, he reminds us of the things that can go wrong in our lives that we cannot comprehend or control-we feel embarrassed by him and afraid of him, repulsed by his weakness and wonder if we can "catch" his disease if we hang out with him too long-it takes effort to see beyond poor old uncle and see the broken noble creature he has living dormant within him-it takes courage to reach out to him and assist his pain, help him take on another day of his life, another moment to just stay with us in the sunshine and not hide in the shadows-it is the very humanity that causes our diseases that causes our affinity to reach out to each other and offer help and care-We can start by trying to teach people to care-everyone seems to have an ol uncle Bill Best Wishes, Arthur
– The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks,
snip: Hi Arthur: Good rant! Good points in it too.
However, I don’t understand why people don’t speak out more about the suffering we endure? Over the years, I’ve tried. I know one of the major problems is that people who do not suffer from anxiety disorders, do not understand how we feel. Yes, even the pdoc. How can they, if they have never had an attack? In an attempt to explain what I’ve been going thru since I was 16 (first attack) — now I’m 64 and the anxiety monkey still rides on my shoulder, I’ve told those who were willing to listen, that they should try to imagine something they are afraid of and then magnify that feeling at least 10 times. Doesn’t work. They can’t do it. I cannot remember how many times, but I know there have been a LOT, when I said to myself I wish I could give that person just one full blown panic attack so they could experience what I’ve been going thru. There have been a lot of new information and medications dealing with this conditions (or set of conditions) since I had my first attack (albeit slowly — until BIG PHARMA realized there was a lot of $ to be had of meds for the condition, but I really don’t invision a public outcry or much support and understanding because: 1) the agoraphobics don’t go out much 2) the social phobic don’t want to make themselves the center of attention 3) the GAD/SAD/OCD people are dealing with the anxiety almost 100% of the time and have low energy levels because of it 4) depressed is the bedfellow of anxiety disorders and draws energy and keeps us down. Lastly, IMO there is still a stigma against those with a "mental illness." This stigma is so strong that it places a wall of silence around this issue. The walls are coming down but very slowly. Maybe we could start by making up a new term to define our conditon. Hmmmmmm "brain disorder." Sounds physical enough for everyone to understand and maybe have sympathy for. I don’t know. Thanx for the thought provoking post. -frizz — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks, I feel the need to vent some frustrations.
Go ahead ! I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me.
They are too me as well and I don’t take things personally However, I don’t understand why people don’t speak out more about the suffering we endure?
Maybe we are tired ? I know I speak out cause that’s who I am. I appreciate that many of us patients have phobias or like conditions that keep us from speaking out.
Yes I know many that are to phobic to speak out and when social phobia plays a role as well things get even harder And the ignorance of those who we are talking to is beyond comprehension . I for myself don’t want someone to "understand" I want to be believed and respected ! I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions.
I don’t All suffering should be seen and respected I appreciate that professionals in various forms of health care have rules or protocol to follow.
Nope I don’t First we need human kindness and than the protocols I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make.
No suffering should be the subject of profit Any civilized society should take care of those that are suffering This IMHO is a world wide issue. I think that we should also give free medicine to Africa and ban AIDS Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error!
Yes and it can take years and it can take your life. Our clinical trials are tainted by conflict of interest, censored results and market influence!
I bet it does ! – Hide quoted text — Show quoted text – Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out.
We are suffering sometimes but we are by no means "victims" We should speak out. It will make us stronger. All bits would make on large voice. I am very upset with health care professionals in general for their lack of support.
You can say that again. After a lifetime of idiotic psychiatrists my GP gave me the right diagnose How about that ? My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words.
Yes we are a nice target for the new age and beyond I once had therapy where They said my fear was anger and I had to shout and shiver to "unlock" Geeeee what a succes NOT Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends.
You have and I for one always admired you very much ! Your passion and courage should be an example I know what boundaries you had to overcome and I deeply respect you for that ! Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
I am glad you took the time to post this It is inspirational for me to see your posting and I want to add that I strongly believe in stepping out and telling others what it is like With much love from Anna — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi, Arthur, Very interesting post from your POV. I respect and agree with what you have written. smiles, Elise
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur — The charter is available at: http://readystump.algebra.com/~asapm
– The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur — The charter is available at: http://readystump.algebra.com/~asapm
Response:
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
That was an awesome post, Arthur. I agree with everything you said. We can always care about each other even if others don’t. There are millions of us after all – imagine what our voices could accomplish if we spoke together! _TJ_ — The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Arthur. Thanks for posting your vent. I think we all know that what you say is true. It’s usually the case that the loudest voice and the biggest wallet get the most things done when it comes to the big organisations. As you say, anxiety disorders preclude their sufferers from having both, by making it difficult/impossible to earn enough or go to public or private meetings where their voices might be heard. I think we all also know the efforts you’ve made on our behalf in bringing such conditions to the notice of the "professionals", for which I thank you. The biggest question stems from your last point. How can we get this condition addressed? I don’t know. Letters? Emails? Petitions? Unfortunately they are usually a poor substitute for face-to-face contact. Maybe someone has some suggestions? Anyway, you’ve done all you can for now, and I’m sure something positive will have been achieved by your efforts, so don’t feel too despondent. Your passion just needs a new direction now. All the best, Steve.
– Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Our convicted criminals are given ten-times more health care than law-abiding disabled people! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
– The charter is available at: http://readystump.algebra.com/~asapm
Response:
Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure?
It is difficult if not impossible to get up the courage to "get things going" for fear of being misunderstood and just plain fear. I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions.
These disorders put people off. They don’t understand them and are afraid of them. Some people even think that they are contageous. – Hide quoted text — Show quoted text – I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error!
I share that opinion. That is why when I moved, I refused to be referred to the local shrink. I didn’t want to repeat everything that previous doctors had done over a period of years like try this med and try that med…..I had tried them all with no benefit but they want to do it again anyway so I just say no. Under no circumstances will I see another psychiatrist as I am not a lab rat. Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians!
Of course. If the military admitted that there was a problem then they would have to try and figure out a solution. They have a hard enough time aiming at things and pulling the trigger or pulling the trigger without aiming at things properly identified. Our convicted criminals are given ten-times more health care than law-abiding disabled people!
Now there is the solution. Need medical help, rob a bank!! – Hide quoted text — Show quoted text – Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur
Good post Arthur. — Ron P Member of the invisible generation — The charter is available at: http://readystump.algebra.com/~asapm
Response:
I agree with everything you said Arthur. The least we can do is raise awareness, which in itself can be trying. Thanks for the great post! Sunil – Hide quoted text — Show quoted text – Hi Folks, I feel the need to vent some frustrations. I don’t want anyone to take the following personally. Many fellow patients, friends, family, doctors, therapists and the like are dear and much loved by me. However, I don’t understand why people don’t speak out more about the suffering we endure? It is difficult if not impossible to get up the courage to "get things going" for fear of being misunderstood and just plain fear. I appreciate that many of us patients have phobias or like conditions that keep us from speaking out. I appreciate that many people who are not directly afflicted by anxiety disorders would rather ignore such conditions. These disorders put people off. They don’t understand them and are afraid of them. Some people even think that they are contageous. I appreciate that professionals in various forms of health care have rules or protocol to follow. I appreciate that pharmaceutical companies, alternative medicine companies, motivational speakers and popular authors have profits to make. Nonetheless, I feel a sense of outrage regarding the perceptions and treatment of anxiety disorders. Our best treatment strategies remain forms of blind trial-and-error! I share that opinion. That is why when I moved, I refused to be referred to the local shrink. I didn’t want to repeat everything that previous doctors had done over a period of years like try this med and try that med…..I had tried them all with no benefit but they want to do it again anyway so I just say no. Under no circumstances will I see another psychiatrist as I am not a lab rat. Our clinical trials are tainted by conflict of interest, censored results and market influence! Our military veterans’ mental health is dismissed almost as quickly as the mental health of civilians! Of course. If the military admitted that there was a problem then they would have to try and figure out a solution. They have a hard enough time aiming at things and pulling the trigger or pulling the trigger without aiming at things properly identified. Our convicted criminals are given ten-times more health care than law-abiding disabled people! Now there is the solution. Need medical help, rob a bank!! Over the last decade I’ve tried my best to raise awareness of all these issues. Some remarkable people joined such efforts, but a surprising many did not. Consequently, conferences and other efforts have collapsed. I can’t blame my fellow patients because I know how hard it is to speak out. I am very upset with health care professionals in general for their lack of support. My feelings towards people who continue to sell misleading products and services to my fellow anxiety disorder patients is hostile beyond words. Though I am feeling thoroughly discouraged and exhausted, I am not defeated. I still have passion and I still have friends. Anxiety disorders have existed throughout human history and will be a part of our future. This is a problem that will not simply go away and must be addressed. Best Wishes, Arthur Good post Arthur. — Ron P Member of the invisible generation
– The charter is available at: http://readystump.algebra.com/~asapm
Response: